> Timeline: 01 January 2019 – 31 December 2022
> Key Words: #PalliativeCare #Care #Support #Dignity #QualityofLife
Due to the increased incidence, prevalence and mortality from chronic disease and multimorbidity, the need of palliative care is becoming a greater challenge for health and social care systems. However, access to palliative care remains insufficient and fragmented, and due to demographic ageing, the rate of people requiring this kind of care is set to increase over the next 25 years.
The INADVANCE project will have five clinical trials that will be performed in Valencia, Leeds, Inverness, Lisbon and Thessaloniki where early palliative care interventions will be implemented and studied. These interventions will take into consideration palliative care from a holistic approach: understanding the person in need of these services and their physical, psychological, emotional, social and spiritual needs as well as own values and preferences; and inputs from their families and front-line professionals too.
The overall aim of the project is to improve the benefits of the palliative care interventions for patients, families and informal caregivers as well as front-line practitioners through the design of effective, replicable and cost-effective early palliative care interventions centred-on and oriented-by the patients. Such benefits are:
- Improved or maintained quality-of-life among patients and families and/or caregivers
- Alleviated symptoms among patients and families and/or caregivers;
- Increased social support among patients and families and/or caregivers;
- Increased caring and coping skills among families and/or caregivers;
- Decreased caregiving burden among families and/or caregivers;
- Decreased burnout or improved skills and competences among front-line professionals.
- Webinar for AGE members:
In the framework of the project, digital educational and support programmes will be created for front-line staff but also for older people in need of palliative care and their informal carers. It will train users on how to response in specific cases based on the needs of the older person. The webinar will be the opportunity for AGE members to provide feedback on the material and improve the final training programmes.
- Policy recommendations:
Based on the results of the 5 pilot sites in Amadora (PT), Leeds (UK), Inverness (UK), Thessaloniki (EEL) and Valencia (ES), AGE will draft policy recommendations for policy makers to raise awareness on the importance and benefits of early provision of palliative care.
AGE will provide support to Salumedia Tecnologías SL in sharing projects relevant results to its members and its network.
Together with AGE, the INADVANCE consortium brings together leading interdisciplinary academic, clinical and technological partners from across the EU:
- Universitat de Valencia (Coordinator)
- Fundación para la investigación del Hospital Universitario de la Fe de la Comunidad Valenciana
- Highland Health Board
- Erasmus Universitair Medisch Centrum Rotterdam
- Aristotelio Panepistimio Thessalonikis – Eidikos Logariasmos Kondilion Erevnas
- University of Leeds
- Salumedia Technologías SL
- Universitat Politécnica de Valencia
- Irmandade Da Santa Casa da Misericordia da Amadora IPSS